Global Clinical Commons
Building the world's largest dataset on rejection sensitivity in ADHD through ethical, privacy-preserving collaboration between clinics worldwide.
Our Vision
RSD has been described by clinicians for decades, but we've lacked the systematic measurement tools needed to study it properly. By creating a shared infrastructure for assessment, we can finally build the evidence base that RSD deserves.
Our vision is a Global Clinical Commons — a collaborative network of clinics contributing anonymized data to advance understanding of rejection sensitivity in ADHD. Every assessment contributes to norms, informs cut-offs, and helps identify what works for different patient profiles.
This is not about extracting data from clinics. It's about building something together that benefits everyone — clinicians, researchers, and most importantly, patients.
Core Principles
Data Ethics in Detail
- •Age band (e.g., 26-35)
- •Sex (male/female/other/prefer not to say)
- •ADHD status (diagnosed/under assessment/suspected)
- •Country
- •Assessment responses (item-level)
- •Timepoint (baseline/follow-up)
- •Instrument version used
- •Names or initials
- •Dates of birth
- •Addresses or postcodes
- •NHS numbers or other identifiers
- •IP addresses linked to patient data
- •Clinic names in research datasets
- •Any information that could identify individuals
Research Roadmap
Our phased approach to building an evidence base for RSD measurement.
Building the initial dataset through clinical use. Current focus on reaching sample size targets for psychometric validation.
Key metrics: Target: 500+ assessments across diverse populations
Factor analysis, internal consistency, test-retest reliability. Confirmation or refinement of the six-domain structure.
Key metrics: Factor analysis, Cronbach's alpha, ICC calculations
Development of age-band and sex-stratified norms. Conversion of raw scores to percentiles and T-scores.
Key metrics: Stratified norms, percentile tables, T-score conversions
ROC analysis to establish empirically-derived severity thresholds using clinical anchors.
Key metrics: Sensitivity, specificity, AUC, PPV, NPV
Analysis of change patterns, identification of treatment responders, domain-level response signatures.
Key metrics: Reliable Change Index validation, minimal clinically important difference
Publication Pathway
All research findings will be published in peer-reviewed journals under open access where possible. Contributing clinics will be acknowledged, and clinic leads who meet authorship criteria will be offered co-authorship on relevant publications.
Planned publications include:
- Development and initial validation of the RSD-RS
- Psychometric properties and factor structure
- Normative data for clinical interpretation
- Treatment response patterns and predictors
- Cross-cultural validation studies
Research Advisory Board
We are assembling an advisory board of clinical researchers, psychometricians, and ADHD specialists to guide the validation process. If you're interested in joining or nominating someone, please get in touch.
Advisory Board Positions OpenJoin the Global Initiative
Every clinic that joins brings us closer to robust, evidence-based tools for measuring RSD. Be part of building something that benefits the entire ADHD community.